Tuesday, December 16, 2014

Support and Encouragement Beyond Words

     Thanks to so many of you who have prayed for me and supported me as I go through this process. I have the best family and friends ever. Your support and encouragement is immeasurable.
     It has been just over three months since I last added a blog entry.  Last week, I went to UNC for kidney tests and my doctor's appointment. For many years, I have gone on the Monday before the doctor's appointment that Thursday for lab tests so that we know the results when I see Dr. Falk. Well, somehow, the lab lost the blood samples and had no record of it ever existing.  Needless to say I was very frustrated and disappointed, but the only option was to do the tests again. Thankfully UNC has an online chart and I received the results on Saturday. My kidney function remains stable at 20%.   With my kidney function remaining stable at this time, I am very fortunate to not need dialysis yet or need transplant surgery immediately without someone approved as a donor.  I continue to not feel well or have much energy, but thankful that my condition is not worse.
      Last week, while being examined by the doctor, I mentioned that my blood pressure readings had been very high. I have been on blood pressure medication since experiencing renal failure in 1988. The doctor decided to switch one of the medications I take for a new prescription.  Unfortunately, my blood pressure has remained very high which adds to me not feeling well and my lack of energy.  After contacting the doctor yesterday, he doubled the new medication and told me to go on bed rest. I am taking off three days this week with faith that the increase in medication and rest will help.  The support of my co-workers this week is beyond words, and I thank them so much.
     In January, a friend and I will go to UNC for testing to confirm she is a healthy transplant donor. Last month, compatibility blood tests were completed and the results confirmed that she is a compatible donor.  This was such exciting news, and she is as thrilled as I am.  My goal is to have a donor in place before needing dialysis and a transplant.  Please pray for my friend and I as she goes through this process. The emotions of this process can be very overwhelming.  
   I had a wonderful opportunity this weekend at church to meet Aaron Wilburn, a Christian comedian. Aaron had a kidney transplant in 2010. It was awesome to relate with someone who knows exactly how I feel. While talking with him, it was like having a conversation with myself. His encouragement for the future meant a lot and as I patiently wait, I know better days are ahead.
     I greatly appreciate all the amazing things you have done for me in 2014.  Wishing everyone a Merry Christmas and Blessed 2015.  
     
     
      

Thursday, September 11, 2014

High= More of This and More of That

      It has been quite a while since I have posted a update. There is no way to thank everyone who has prayed for me and expressed kind words of support.  It means more than you will ever know.
      Today I went to see Dr. Falk, my nephrologist at UNC.  My kidney function is currently 20%.   The major concern at today's visit was my blood pressure.  Since last November, I have been taking blood pressure medicine three times a day, but yet it has been fairly high.  About a month ago, I began experiencing a "heavy" feeling in the top of my head.  I checked my blood pressure at that time, and it was EXTREMELY high.  Each day since then, I have experienced the same sensation. Showing Dr. Falk a log of readings was very helpful, because he was able to see what I have been experiencing.  I will continue to take blood pressure medication three times a day, but the dosage of Lasix has been doubled as well as another blood pressure medication dosage increased.. Being on 160 mg. of Lasix during the day actually scares me.  I am  afraid I may need to put a port-a-potty in the corner of my classroom! He also told me the symptom of dry mouth will increase quite a bit.  I literally drink all day long now because of dry mouth.  If there is not an improvement in the next two weeks, I have to let him know. Please pray medication changes are successful in controlling my blood pressure.  
      He talked with me about the importance of finding a donor so  I don't have to go on dialysis and wait 5 years for a deceased donor when the time comes for a transplant.  Very shocking information he shared was that many patients on the transplant list have at least seven potential donors tested before finding a match.  I am thankful to have a potential donor who should be tested in the next few weeks. If by chance you are considering becoming a donor, please call and talk with Amy Woodard, Living Donor Coordinator at 919-966-3079. Thank you. 
     

Wednesday, July 16, 2014

Excessive = Not Enough

      I am truly enjoying summer break.  It has been great to rest and attempt to organize some of the chaos in my home that I have neglected.  Still have a lot more to do, but I believe in the philosophy of something is better than nothing
      Last week I went for an appointment at the Nephrology Clinic with Dr. Falk.  I have been seeing him multiple times a year since 1988 and it was one of the most frustrating appointments I have ever experienced.  To make a long story short, someone ordered the lab reports for Dr. Falk and did not order the correct tests.  The results of the tests correctly ordered were very extreme  and Dr. Falk was convinced the results were incorrect.  I basically left the appointment not knowing anything and frustrated.  Dr. Falk ordered more tests and I now have results. 
      Thankfully this week I received a phone call explaining test results.  Due to the damage in my kidneys, my urine spills protein.  This has been occurring since I had renal failure in 1988. The amount of protein has increased quite a bit, and is the highest it has been in the last 25 years.  Because the urine is "spilling" so much protein, the albumin and protein in my blood is low.  It was explained to me that the protein in my blood is so low that it would appear that I am someone who is malnourished.   (You can certainly look at me and tell I am far from malnourished)!  Low protein in my blood is due to excessive protein in the urine.  At this time, I just need to make sure I am eating healthy and taking good care of myself.
      Despite excessive protein = not enough protein, my kidney function is stable.   I will see Dr. Falk again September 11.  I appreciate the support of wonderful friends and family for your love, concern and prayers for me.  The journey for a kidney transplant has been interesting to say the least and Dr. Falk says it will occur, just delayed as long as my kidney function is stable.  I know God's timing is always perfect.

Monday, June 30, 2014

Rest, Tests and Blessings

     Summer is my favorite season and even though it is hot outside, I love this time of year.  School dismissed just over 2 weeks ago and I am extremely thankful for some time to rest and reduce the amount of stress in my life. 
     Next Monday, I prepare for kidney function tests. Tuesday I will have the tests completed, see Dr. Falk on the afternoon of July 10 and receive test results at the appointment.  When I saw him May 1, my kidney function was stable from February at 22%.  22% was a major increase from 15% in December.  As I have mentioned before, I have difficulty with remaining tired, dry mouth and a consistent metal taste in my mouth.  It would not hurt my feelings one bit next week if Dr. Falk told me I needed a transplant the next day.  Actually now that I say that, I don't really  mean the next day. In all seriousness, I know God has perfect timing for when the transplant will occur.  
      Angela Oldham is the top person on the potential donor list and should be tested in August.  I will have to begin dialysis if I don't have a donor at the time I need a transplant.  If a donor is in place, long term dialysis will not be necessary.  Please pray that Angela or others who are potential donors will be a match for a transplant. 
      I received wonderful news today in the mail from HelpHOPELive.  HelpHOPELive is the non-profit organization which holds the funds we have raised for transplant expenses.  $1,000 has been deposited into my account from the organization.  This is the SECOND $1,000 grant  I have received from HelpHOPELive!  The grant is issued for each $10,000 we raise. We have raised just over $28,000 from fundraising events and gifts from individuals. At the current time, we do not have any fundraising events scheduled, but greatly appreciate everyone who has contributed in numerous ways thus far.  You may view my page keying in  www.HelpHOPELive.org, click on find a patient, key in my first and last name and then click on kidney for type of transplant. You should then be on my page.  Please take time to read the appeal letter from Ronnie. 
    Much thanks to so many who have prayed for me as I go through this journey.  I tremendously appreciate the support of many friends, family members and strangers.  May God continue to Bless Each of You!
    

Saturday, June 14, 2014

June 14

 
       Today has been a phenomenal day with a fundraising event at "You Define Art."   One year ago,  June 14 was vastly different.  I went to UNC for the first kidney biopsy since experiencing renal failure in 1988.  My kidney function had been decreasing and lab values were concerning to Dr. Falk, my nephrologist. Dr. Falk wanted me to go in for a biopsy as soon as I finished the school year. I was rather anxious about having a kidney biopsy because in 1988, there were complications and I received 4 units of blood. (Back in the day before there were many restrictions about donating blood because of AIDS).   I remember on top of being very ill from renal failure,  losing blood and receiving transfusions was another challenge to overcome.  I had been told the schedule of events for the day and to expect to remain at the hospital for 10-15 hours.  Ronnie and I  arrived around 7:30 am and expected to go home around 6 pm at the earliest.  After checking in, I went to the lab for blood work.  Next was an ultrasound of my kidneys at the radiology department..  Of course, lots of waiting in the lobby in between tests.  When it was time to go to the "holding room" before the biopsy, Dr. Nachman, a nephrologist asked me to sit down and talk with him. That should have been my first sign that something was wrong.  Dr. Nachman stated that the ultrasound revealed that both kidneys had deteriorated to the point that there was any tissue to obtain for a biopsy.  I remember sitting in disbelief of the words he was telling me.  Not having a biopsy ever even crossed my mind.  He attempted to contact Dr. Falk, but little did we know that he was having emergency heart surgery. 
      A lot has happened since June 14, 2013.  I began the journey for transplant last fall and greatly appreciate the prayers and support of countless individuals.  There is no way I could get by without the support of each of you.  My next appointment at UNC with Dr. Falk is July 10 and I will go in for tests a few days before that.  Thankfully, I am on summer break and look forward to getting some rest.
       Several months ago, Ashley coordinated a fundraising event at "You Define Art" in Smithfield.  46 others joined me today by painting decorative items.  Today, June 14, 2014 has been such a wonderful day and we had a blast painting!  Thanks to everyone who came and those who ordered items to be painted.  I have included a few pictures from today.



My Daughter Ashley and Daughter-In-Law Kelsey
                                     


Friends: Daryl and Gina


Monday, May 26, 2014

24: Young and Niave

      It has been a while since I last posted a blog.   I am encouraged by many who share with me that they enjoy reading my posts and keeping up with my kidney transplant journey.  Today's post includes the words of three individuals very close to me and were by side when I had renal failure in 1988.  Ashley made this suggestion to me and I am very happy they assisted me with writing today's blog.  Once again, I am humbled by the kindness and words of others.
      As you  know, I had renal failure after Ashley's birth.  The pregnancy was uneventful.   ( I always think about her and Justin being unplanned pregnancies and shake my head.  In May, 1987 I was diagnosed with endometriosis and Dr. Lies told me it would take at least two years for me to get pregnant.  Ronnie and I had not even been married a year.  Needless to say we were excited, but not what we planned, but we knew it was in God's plans).  My health was great and I was in great shape.  I even worked outside doing yard work on her due date. 
     After a difficult labor experience, she was born nine days late.  Somehow holding my healthy baby girl, made the labor insignificant.  Two mornings later, I woke up not feeling well with a low grade fever.  After telling the nurses I was sure I would be fine, Ashley and I were discharged from the hospital.  Within hours, I was very ill and remained in the bed for most of the following week.  My mother took me to the doctor that week and I prescribed an antibiotic and told to take Tylenol.  After being ill for a week, I remember Ronnie telling me he was taking me to the hospital because he was afraid I was going to soon die in our home.  I was admitted to the hospital in Goldsboro, the town we lived in at that time.  A hospital bassinet was provided for Ashley and she stayed in the room with me for a few days.  Within a couple of days, I began swelling over my entire body.  I gained 40 plus pounds of fluid in less than a week. At this point, I was unable to function at all.  My face was so swollen that I could only see the silhouettes of family members.  Sometime in the midst of all of this occuring, I was misdiagnosed with Rocky Mountain Spotted Fever (even though the tests were negative). After  being in the hospital in Goldsboro for almost a week, the doctors determined I was experiencing renal failure. I was transferred to UNC-Chapel Hill.  Immediately every medical specialty area began examining me. Within a day or so, a kidney biopsy was performed and I was diagnosed with two kidney diseases; Minimal Change Disease and Acute Tubular Necrosis. Even though I was conscious, I remember being so ill and not truly realizing all that was occurring. 
      At that time, Ronnie and I lived in the western part of Wayne County in the Rosewood Community, and he worked for Winn-Dixie in Kinston. Chapel Hill was not convenient to either town, and Interstate 40 was not completed at that time. I can not imagine what all Ronnie went through during those days with a wife dying in Chapel Hill and a newborn. 
     I am forever grateful for Dr. Ronald Falk being assigned as my physician.  He is a such a wonderful doctor and I have been blessed to be under his care ever since.  After receiving mega doses of Prednisone, Lasix, and receiving dialysis, I finally urinated after almost 3 weeks.  It looked more like motor oil, but it was urine. After being hospitalized for several weeks, I was discharged from the hospital 60 pounds lighter than when admitted.  My kidney function improved drastically and I began to think that I would fine forever.  Being young and naïve,  I never realized that living with renal disease was a life time commitment with future consequences due to the damage both kidneys sustained.  As Dr. Falk told me in July of last year, I  had been given  25 good years up to this point and very fortunate. 
       I thank God for all those who have prayed for me over the past 26 years and supported my family in various ways.  Please read these words from three special people in my life.  Janet Owle and Joan Howell are my sisters, and Sue Floars took care of Ashley while I was in the hospital and even for a short while after I came home. 
 
      Words from my oldest sister, Janet Owle 
      "When Myra became pregnant with her first child, it was an exciting time for our family!  My sister, Joan, had one son who was 17 years old, and I had one daughter who was 14 years old! A baby in the family was exciting news! After Ashley was born my husband, daughter, and I made the trip from our home in Chesapeake, VA to meet our newest family member!  Ashley was a beautiful healthy little girl! Excitement filled our family.
     Little did we know that our joy would be interrupted by unimaginable crisis! We returned home to VA, when a couple of days later we received a call that Myra had returned to the hospital because of headaches and some swelling.  Nothing too serious at that time; however things took a turn for the worse and Joan called me at school and said to come home to NC immediately! Myra had gained an excess of forty pounds of fluids!  When I walked into the room and saw our baby sister so sick, I just knew that her time with us was limited!  Thankfully God's plan was different.  Ronnie, her husband decided to have her transferred from our small hometown hospital to Chapel Hill at UNC Hospital. Within a short time Dr. Falk, and his staff had her stabilized, and after spending about six weeks in the hospital she was able to return home and spend time with her sweet baby.
     In the meantime you are probably wondering what was going on with Ashley. A family friend of Ronnie's family took care of her while Myra was hospitalized. The Floars Family were Angels send by God to love and care for Ashley.  My mother and sister spent days and nights at the hospital to help Ronnie through this difficult time. Whenever possible, I would come on weekends to help relieve the family.
     Acute kidney failure is what I remember hearing, and thinking what does this mean? Now, that I have seen my sister live with renal disease over the past twenty-six years, I understand.  She has endured the countless urine collections and trips to UNC for check ups, as well as the side effects of her disease. Through it all she has raised great kids, been a teacher of special needs children, and been a wonderful wife to Ronnie!  She is one of the first to meet the needs of her friends whoever they are in need, because of illness or whatever may be going on in their lives.  It is no surprise that her friends and colleagues have rallied around her with such support as she awaits her transplant and the next chapter of her journey!"
      From my sister, Joan Howell

      "Twenty Six years ago this month, my family and I were blessed with a new baby girl in our family born to Ronnie and Myra Jones, my sister and brother-in-law.  We were so excited and then Myra started having problems shortly afterwards.  She had to return to Wayne Memorial a week or so after Ashley was born.  I remember going to the hospital and she was retaining so much fluid, she looked distorted.  The doctor kept saying we are trying this and when that didn’t work, he’d try something else.  She gained about 40 lbs in less than a week.  I was really scared.  Finally after many discussions, she was moved to Chapel Hill hospital.  I was living and working in Raleigh at that time.  Every morning I would go to the hospital in Chapel Hill before going to work to check on Myra.  One morning while I was there, Dr. Falk told me he needed to talk to me.    He said he wasn’t sure if Myra was going to live, but that he was going to do all he could to help her and he did.   It was a very scary time for all of us.  After a long recovery time, she was able to go home to her baby and husband, Ronnie.   Myra has made many trips to that same doctor at Chapel Hill for the last 26 years and even  though her kidney function has not been normal, it has been enough to get by until last year.
Please be in prayer with me that God’s Will  be done in her life.  Also, that healing will be done through a kidney transplant for my sister that I love very much.
     From Sue Floars, family friend:
"God Gave Me Ashley
         Ronnie’s mom and I were classmates at Goldsboro High School. We had three sons each, the same ages, and we shared lots of other things at church and in school. We both dreamed of having a little girl.
         It was heartbreaking when Shirley was stricken with cancer. She fought hard for a while, during which time we drew much closer. I helped any way I could, and had been there at the hospital the night before her home going to Heaven. It was a very hard time for them all- Myra had just lost her dad three days earlier. I remember telling the boys that night that I could never take their mom’s place, nor would I try; but I would always be there for them all.
        About three years later, Ashley was born May 5, 1988. Just a few days later  I received word Myra was being rushed to UNC Hospital in Chapel Hill and Ronnie needed help. I went to her mother’s house and there Ronnie gave me Ashley to care for. I was keeping my two-year-old granddaughter at the time, so I had a nursery set up with all she would need.  I was very concerned for Myra’s health, but thrilled to be entrusted with sweet baby Ashley.
        My granddaughter, Laura Lea, thought that we had gotten her a baby! Ashley was beautiful with her big brown eyes, dark hair, and dark complexion. She stole my heart and by the end of the first day the whole family was in love with her. For the next five or six weeks, she was “our baby”. We enjoyed her so much. Jackie, my husband would wake her up every morning before going to work to love on her and play with her.
        Ronnie was staying with Myra as much as possible, but he would come to my house or call to check on Ashley every day. When he would come by, Laura Lea would stand in front of him with her little arms out to the sides and say, “my baby!” She didn’t want him to take her. Ronnie and I grew very close during this time- we would cry, laugh, and pray together.  We shared so many special times. He really opened his heart to me and the Lord.
        As I look back, I am amazed at how something as bad as kidney failure could bring out such joy and love. God had Myra’s sickness 26 years ago just like He has it today.
        Thank You, God, for giving me a small part in Your plan; and thank You for giving me more family. Ronnie, Myra, Ashley, and Justin are all a part of my family. They have brought much joy and happiness to my life!"
       Thanks to Janet, Joan and Sue for sharing.  I am forever grateful to them, Ronnie, and my mother.  Due to God's plans for my life, I survived an incredible illness.   
      At the present time, my kidney function is stable at 22%.  I have been placed on the United Network of Organ Sharing (UNOS) list and hoping to have potential donors tested soon to determine if they will be a match for transplant.  With my kidney function 22%, the doctor states I continue to need a transplant, but it will be delayed.  In December, my kidney function was 15% and Dr. Falk was very alarmed.  22% is a large increase from 15%.  Please continue to pray for me as I go through this journey.  I have issues with high blood pressure, extreme dry mouth, strong metal taste in my mouth, swelling when I awake in the mornings but especially lack of energy.  Summer break is coming soon and I can't wait! 
      Fundraising has been extremely successful and there is no way to thank each contributing person and organization enough.  May God Continue to Bless Each of You Who Has Blessed Me! 
 


 

 
 
 
 
      

Wednesday, April 2, 2014

Generous.... Gracious.... Giving

     WOW!!!  The last couple of weeks have been incredible. I have been blessed by the most generous, gracious and giving friends a  person could ever dream of having.  There are also many strangers who can be described the same.  It has been several weeks since I posted a blog update, so I am behind with sharing information.  About a month ago, I signed up with HelpHOPELive, which is a nonprofit organization that will manage all funds collected through fundraising. Future and past fundraising events include the "Urine My Heart" Golf Tournament, 31 Parties, Premier Jewelry Party, Avon, Oragami Owl, You Design Art and selling kidney pins. Also, I have completed all pre-transplant medical tests and doctor's appointments. This journey is not always easy, but the support of family and friends is beyond anything I could have ever imagined.
     Many people have been very generous with supporting fundraising events or making donations. As I mentioned, HelpHOPELIVE will manage my funds.  HelpHOPELive is an organization outside of Philadelphia and provides fantastic support.  I am assigned a Patient Services Coordinator.  Her name is Amy and she is awesome.  HelpHOPELive assists of course with managing the funds and awards a $1000 grant for the first $10,000 raised and again when $20,000 has been raised.  Amy assists by producing flyers for events, providing ideas for fundraising and answering any questions I might have for her.  HelpHOPELive also provides a patient page.  To see my page, go to www.HelpHOPELive.org, click on find a patient, key in my first and last name and then click on kidney for type of transplant. You should then be on my page.  Please take time to read the appeal letter from Ronnie.  Also, some people have asked how they can make a personal donation.  HelpHOPELive actually receives personal donations on my behalf.  You can mail a check to them or make an online payment.  Their address is on the website.   Donations can also be sent to me with checks made payable to HelpHOPELive. Currently I send funds weekly.  I can not thank everyone enough who has helped to make our fundraising events very successful.
     We are very busy with fundraising events.  I am amazed at how people have responded to the many events we have had thus far.  As I have included in previous blog posts, my co-worker, Tiffany Barber signed up to be a 31 Gifts Consultant in order to fundraise for me.  We have had phenomenal parties and Tiffany has raised $1,175.00!  This is an incredible amount in just 5 parties!  She is a great sales representative and sales have been fantastic.  Thanks to everyone who has hosted a party or made a purchase.  Earlier this month we had a party in Goldsboro, hosted by my sisters Janet Owle and Joan Howell.  Over 50 people attended the party and bought over $2,200 of 31 products.  It was great to see many, many friends who I had not seen in years and make new friends as well.  Four more 31 parties are currently being hosted by Janet Groberski, Glenda Bowen, Kimberly Barefoot, and Tricia Allen through April 13. All parties are online through Facebook.  If you would like to make a purchase, please let me know and I will assist you with contacting a hostess. ( An interesting side-bar is that two of the hostesses are special friends I met through the death of my niece Christy Murray.  Christy died unexpectedly on Valentines Day, 2012 at the age of 37.   Thanks so much to Kimberly Lee Barefoot of South Carolina and Tricia Allen of Raleigh for hosting parties.  I know Christy would be so pleased with the friendships I have developed).  Tiffany vows to continue to fundraise until I have the transplant.  Please consider having a party.  Online parties are super easy and a great way to get awesome products (for free or at an discount) as well assist my donor and me with out of pocket expenses for the transplant.
     On May 2, we will have the "Urine My Heart" Golf Tournament at Lane Tree Country Club in Goldsboro.  We are looking forward to a very successful day.  Many friends are sponsoring holes for $50 or $100, which we greatly appreciate.  I have some of the most generous, giving friends in the world.  Even people we do not know have sponsored holes due to Ronnie's business connections.  Ronnie has many contacts including ARMAC who will be providing signs for the tournament.  If you are interested in sponsoring a hole, please send your sponsorship to Ronnie and me by April 15.  We will be giving ARMAC names for signs at that time.  Also, we would like to for all golf teams to pay in advance if at all possible.  Due to a phenomenal response for golfers wanting to participate in the tournament,  we have had to tell some people that we met the maximum amount of golfers for the day.  If by chance you told us you were going to put in a team, but due to circumstance you are not, please let us know so that we can contact those who wanted to participate as well.  There are many companies providing items for the silent auction and we would love to have more if you would like to donate. Ronnie and I are very excited about the items being donated.  I think those attending the golf tournament will be very interested in making bids at the tournament.  Many friends are volunteering their time at the golf tournament.  We would like to provide a t-shirt for volunteers to wear at the tournament.  If you have not received a message from my daughter Ashley about your size, please contact me by Friday evening with information about what size t-shirt you wear.  If you need a form for hole sponsorship, volunteering or a golf team please email me at Carolinakidney@gmail.com.
     Thanks to Kathryn West, a friend from church and sales consultant for Premier Jewelry who donated $175 from her commission after a party on March 8.  Once again, my friends amaze me. I greatly appreciate everyone who made purchases from the party and helped it to be a success.  Teresa Washak is having an online party until April 8 if anyone is interested in buying Premier Jewelry.  Kathryn will donate a portion of the commission from this party as well. Also, please let Kathryn know if you are interested in hosting a party in your home or online.  Once again, super easy and a great way to fundraise and earn gorgeous jewelry for yourself.
     Kathy Coor, a friend in Goldsboro that I have known for many years sells Avon.  She also decided to fundraise for me and donated all of her commission from two campaigns.   $250 is being sent to the account at  HelpHOPELive.  You just can not imagine the number of times I have cried due to the generosity of friends.
     Another co-worker, Theresa Howard is hosting an online Origami Owl Jewelry fundraising party.  Theresa's mother, Janet Salatino lives in Florida and is a sales consultant for Orgami Owl.  Janet is donating a portion of the commission from the party as well.  This party lasts until April 12.  You can shop online at www.janetsalatino.origamiowl.com/parties/TheresaHoward265285/collections.ashx.   God has placed so many awesome people in my life and I greatly appreciate Theresa and Janet.
    No doubt fundraising efforts have been very successful and beyond anything I ever imagined.  So many people have diligently worked hard to help the donor and myself.
     As of March 17, I completed all pre-transplant appointments.  Unfortunately, I continue to wait to hear from UNC about being placed on the transplant list.  I am trying to be patient, but it is SO DIFFICULT.  Once placed on the transplant list at UNC, I am also placed on the National Registry known as UNOS (United Network of Organ Sharing).  The average wait for an kidney transplant in North Carolina is 5 years. Fortunately when placed on the transplant list,  we can begin the process of choosing a living donor.  A living donor also has to go through countless tests and appointments as I have for the past  5 months.  It is important to have a living donor in place, so when the time arrives that I need a transplant, we will be ready.  Many people contacted UNC about being a donor.  To say I am overwhelmed by your selflessness is an understatement.  Several people were unable to proceed beyond the initial interview due to health conditions.  On the other hand, there are some individuals who met criteria and one will be selected to be my living donor.  When I think about it..... it is amazing to think that anyone would be so generous... gracious.... and giving.
       I am ready to travel in the next phase of this journey and greatly appreciate your prayers. Thanks so much for your support.